Addressing the Design Challenges for a Clinically-Informed Data Capture Tool Targeted for Caregivers of Premature Infants

Following discharge from the hospital, substantial challenges await parents of preterm infants. In this work, we focused on the development of novel capture and access technologies that enable improved record-keeping by parents and sharing of collected data with healthcare providers. Based on semi-structured interviews with 18 parents and 11 providers, we designed a system, called Estrellita, to support parents in the recording and monitoring of the following indicators: weight, appointments, diapering, bonding activities, baby moods, and parental mental health. An evaluation of the clinical impact of using Estrellita is currently underway.